How To Help

02/08/10

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First, a big "THANKS!" to our families, neighbors, friends, and even total strangers that have helped with prayers, wishes, calls, meals, cards, gifts, watching the dog, picking up mail, the list goes on and on. We are new to Texas, and have no family here. Your generosity has touched our hearts and helped more then we can ever express.

We are normally a very private, self-supporting, and proud family, and we feel very uncomfortable asking for help. Some of you ignored us and saved us from ourselves and our own pride. THANKS TO YOU!!

It's not normally in our nature to ask for help. I'm making an exception when it comes to our son, and the other families affected by LCH. Here's how you can help:

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Donate
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Check out Logan's Gift Shop. All items sold raise awareness for Histiocytosis and needed funds for research.

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The Big Fix is a cross-country bike ride to raise awareness and research funds for LCH. Logan has a fund-raising page for this epic event here.

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Buy an arm-band and wear it! Get extra's for friends, family, and the nurses and doctors that treat our children. You can buy 5 for only $12 (shipping included)!

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Because LCH is so rare, its an "orphan disease," which means no government funding. The only funds for research are through donations like yours. Thank You!

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Buy an Awareness pin and wear it!

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Make a direct donation. Make your check payable to "Histiocytosis Association of America" and mail to: Histiocytosis Association of America, 332 North Broadway, Pitman, NJ 08071. If you would like, please indicate "in honor of Logan Johnson" on your check.

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Histiocytosis Association of America (HAA) is the clearing-house for LCH, and they have lots of great ideas (For example, direct your United Way donation to HAA).

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Please be aware that many employers will match your donation if you just let them know about it!

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Promising research is being done at John Hopkins University. Read about it and donate here.

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Prayers for Logan and all the other families fighting LCH
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They really help, and we appreciate every one of them!

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Learn about the disease
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There's links to lots of info here. Learn and then...

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Inform others
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Since it's such a rare disease, not many people are aware of it. That includes the doctor's that we count on. We were lucky to get to a Hem-Onc that knew about LCH and was able to diagnose quickly. As I said, we're normally a private family, but we will gladly talk to the press or anyone else who will listen if it helps the cause. The more who know, the more that will work towards a cure and prevention.

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Watch your own children and grandchildren
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Not to be an alarmist, but never in our wildest dreams did we expect "cradle cap" and an outer ear infection to be indicators of something so serious. Most cradle cap and ear infections aren't indicators of LCH; but learn about the disease, and let a little red flag go up in your head when you see this. Most doctor's don't know anything about the disease.

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This site was last updated 01/26/10